Showing posts with label LAP. Show all posts
Showing posts with label LAP. Show all posts

Tuesday, June 26, 2012

See Spot Run

CD7

TMI WARNING!!

For about the past 20 years my period has gone a little something like this:

2-5 days of light to dark spotting
2-3 days of heavy flow
1-2 days of light flow
2-5 days of dark to light spotting

Yes, on average my period would last from 7 to 15 days! Usually about 10 days most months. Some months it seems that I had my period for longer than I didn't!

And then I had my first LAP surgery in December...

And nothing changed.

Then I had my second LAP surgery in May...

And the spotting stopped!

This was my 2nd AF since the surgery.  The first one would have still been affected by the trauma of the surgery so that one was closer to my old 'normal'.  But this one!  This one went a little something like this:

1 day of extremely light brown spotting in the morning turning to pink by bedtime
3 days of heavy flow
1 day of light
1 day of extremely light brown spotting
1 day of nothing

That's right nothing!  No spotting today at all whatsoever!  I'm not sure, maybe it's the puregon injections or maybe it's the surgery, I don't know... I'm hoping it's the surgery so maybe this will continue.

Friday, May 11, 2012

LAP #2 part 2

When I woke up in recovery, I was freezing, as usual, and they gave me a bunch of warm blankets. I was shaking from the anesthesia wearing off and that made my stomach hurt so they gave me more morphine. Once they gave me 18 something (I don't know what morphine is measure in) of morphine the nurse said I was prescribed 20 so she would just give me the last of it. A few minutes later she was at my side telling me to take a few deep breaths, over and over, she kept repeating that. Then she said she would have to decrease the morphine because I kept forgetting to breathe. Oops! I guess that is kind of important...

After I became more stable, you know... like remembering to breathe... they gave me a banana Popsicle.  It was strange to eat it because normally I have very sensitive teeth and I can't bite into ice cream or Popsicles etc. but because of the morphine, I couldn't feel it at all so I chomped away at that Popsicle.  It was delicious!

While I was in recovery, Dr. F went and talked to D to let him know what happened during the procedure.  She was not able to remove my right tube without damaging the ovary and impairing ovarian function so she clamped it.  She also laserd off a bunch of endometriosis.  Again, she could only do so much with out damaging ovarian function.  I was diagnosed with moderate to severe endometriosis.  I am so glad to FINALLY have a diagnosis of something I have suspected I've had since puberty.  An explanation for the pain and cramping I have every month.

I slept for most of the rest of the day; in the 2nd recovery area, in the car, at home.  I woke up only to eat a little something and go to the washroom.  Around 10 I woke up and then couldn't get back to sleep until about 1am - of course!

I have been recovering well.  My naturalpath gave me some homeopathic remedies to help me reduce the amount of pain killers I've had to take.  It seems to be helping, I've been managing with only 1 T3 every 6 hrs whereas last time I was taking 1 every 2-3 hours. 

Another thing that might be helping in that respect is that the location of the incisions is different this time.  With my first LAP I had two incisions, one in my belly button and the other just above my pelvic bone right at the hair line.  It was that second incision that was always so painful.  They didn't shave the area before putting the tape on and I don't think it held properly because of that.  This time, I have more incision points, but 3 of them are off to the side so it's not so painful to use my stomach muscles and sit up.  I have one point in my belly button, 2 on my right side and one on my left.  I am going to look like I've been a knife fight once they are healed.

No more bikini's for me.

The only real major pain I've been having is from the gas.  During the surgery they pump CO2 into my abdomen to allow them to get a better view of everything using the small instruments and cameras used during laparoscopic surgery.  They try to remove as much of it as they can before closing the incisions, but ultimately some gets trapped.  It will eventually work its way out but right now it's settling in my shoulders when I sit and around my lungs and ribs and it's quite painful.  A heating pad helps the most.  I feel a little bit like I'm wearing a bib with the heating pad tucked up under my chin, but oh well, I'm not trying to win any fashion shows here.

Thursday, May 10, 2012

LAP #2 part 1

Yesterday I had a second laparoscopic surgery. After the first one, I was looking forward to having surgery with a Dr I had more faith in.  Still obviously very nervous, it is surgery after all, but this time it would be at a great hospital and with a better Dr.

I arrived at the hospital at 7am and registered.  My parents met me there at registration and kept D company while I was in surgery. I was impressed at how well everything ran. There was very little waiting between each step.  After registering, I went down to the same day surgery waiting area.  A nurse came and took me to a little room where she took my vitals and gave me a gown and housecoat to change into. 

I was so excited to get to keep my own socks on throughout the surgery!  It's a little thing to be excited about but I remember how cold I was last time and the though of my wool socks was comforting.

Once I was changed, I was set up with an IV.  The nurse had some trouble with my IV and she poked around for quite a bit before she got it in.  When she finally had it, blood went all over.  After the blood was all cleaned up, she went and got D to sit with me while they gave me saline and an antibiotic.  Once the antibiotic was all done I was taken to the surgery ward.  my parents got to walk down there with me but they had to wait in another waiting room until after I was done.  I said good bye to them there and went with D to another waiting area.

This area had boxes on the walls with different Dr's names on them and we went and sat in the chairs under Dr. F.  There, we met with the anaesthesiologist and the nurses and residents that would all be helping Dr. F in the OR.  I also got to meet with Dr. F briefly before I went in.

There was a little confusion about whether a laser would be used or not.  Dr.F doesn't use the laser, but there is another Dr who helps with it and he was able to be there.  Just before I was put under, they had me initial a change to my consent to include laser.

Once the consent was changed, they put the oxygen mask on and added a new drug to my IV and I felt the warmth spread over my head and I was out.




Saturday, April 28, 2012

Surgery or no surgery?

This past two weeks have been a bit of a roller coaster with good news and bad news and confusion all around!

Last Tuesday I had my pre-op appointment with Dr. F to sign the consent for surgert and go over the risks etc.  With Dr. M, he tested my tubes last May and it showed they were open, then during the surgery he declared them both closed, but he did not perform another test. Dr. F is not really comfortable taking the word of Dr. M when his reports are conflicting so she ordered another test; a more accurate one than the one I did last May.  It's called a hysterosalpingogram (HSG).

During the HSG, a contrast dye is inserted into my uterus and forced through my tubes while images are recorded on an x-ray. As it turns out, my left fallopian tube is open! But my right is still blocked with nice fat hydro. The image below is NOT mine but it shows kinda what mine looked like.

Figure 2

Notice on the left side that the dye looks like smoke, but on the right it is more solid? That is because on the right the dry is being trapped and contained rather than being released into the abdomen. There was a slight anomalie with mine. At the base of the right one there was a small area that also looked like smoke. This meant that my right tube, while diseased, might possibly be open too. If both tubes are open, then I wouldn't need surgery!

Because the test on my right tube was ambiguous, Dr. F got a second opinion from one of the other RE's at the clinic. They agreed that the tube should be treated as closed because the area of 'smoke' was so small.

What does this mean?

Basically, since I have one open tube, I actually have a chance at a successful Intrauterine Insemination (IUI) which is much much cheaper and less invasive than IVF. If I choose to do IUI, then I don't need to do surgery.

With the blocked tube, there are studies that show IVF is more successfull if the tube is removed. However, there are no studies on IUI and blocked hydro tubes, so she can not say that removing the tube would be beneficial.

If we are going to do IVF, I should have the surgery. But if we would rather do IUI, then I would't need to have the surgery. However, if we try IUI and it doesn't work and we want to persue IVF, I would need to have the tube removed at that point. So, we need to make a decision.

IUI has only a 10-12% chance of success and a 5-10% chance of ectopic (pregnancy in the fallopian tube) whereas IVF has a 60-70% chance of success. And we can only do IUI on the months that I ovulate on the left side since that's the only tube that's open. And those percentages were before I asked her about D's SA results. OF course, he was out walking the dog when I was talking to her so she couldn't give me the numbers, but his count is low so our chances are probably a little lower than 10%. We figure we will likely end up doing IVF eventually, but it's really hard ignore the fact that IUI will cost $350, while IVF will cost $10,000.

I have decided to go ahead and do the surgery on May 9 as planned and we will have to think about whether we want to do an IUI or two before IVF. A successful IUI would be like winning the lottery, and you can't win if you don't play. We are thinking about buying one 'lottery ticket' before going all in with IVF. I keep second guessing that choice though.

Technically we have some time, I'm turning 32 next month and D is the same age. The only thing that puts us into a time crunch is that D is supposed to be on a drug to supress his immune system a little so that he doesn't develop a resistance to Remicade (the drug to treat his Crohn's Disease) but he's not taking it while we TTC. His GI says it's safe, but everything I've read says there is a risk of major birth defects if the male partner is taking it and both RE's that we've had say it's not safe. So he has not been taking it for 2.5 years now and I'm constantly worried that he will build up a resistance to his miracle drug. (You should have seen him before he got on this, he was sooo sick and in sooo much pain all the time I can't watch him go through that because my body is screwed up and can't have babies).

But really, what's another few months for a chance to "win the lottery"?

Friday, December 2, 2011

And the punches just keep on coming...

Yesterday I had my surgery.  It was an incredibly crappy and fucked up day.  I'm still not sure what to make of it.

I got to the hospital nice and early, about half an hour before they said to because we weren't sure what traffic would be like.  When I got there I had to fill out some forms and sit in one waiting room.  My mom and dad and D were able to sit with me there.  Then they called me into another area where they took my blood pressure, weight, temperature etc. and got changed into the hospital gown.  They had another waiting area in this room, but only D could stay with me there because there was very limited seating.  I waited there for another hour, hour and a half before being moved to yet another waiting room.

45 min later, I met with the anesthesiologist and Dr. M and was then taken to the OR. Once in the OR, I had to give my name and confirm what procedure I was there for. I then got up on the table and they inserted the IV into my hand.

Dr. M came in while the IV was still being set up and asked if I was ready. I joked around saying no, I'm not ready, I can still talk, please wait until I can't talk anymore! The anesthesiologist then inserted what he called "my lunch" into my IV and they put the oxygen mask on me and I was out.

When I woke up in recovery, I was in quite a bit of pain and was freezing cold and could not stop shaking. They brought be 3 or 4 heated blankets to warm me up and gave me a shot of morphine. After the morphine, I was still hurting so they also gave me Oxycontin. Eventually I warmed up and stopped shivering and that helped with the pain too. After about half an hour or so I was moved back into the same room I got ready in to finish recovering and D was able to be with me again.

Dr.M was supposed to come and talk to us after the surgery to let us know how it went, but instead he left me a note.  I assumed he was probably very busy, I could tell that he had back to back to back surgeries lined up all day.  When D finally opened the note I was am very upset by what it said and the fact that he didn't tell me in person.

The note said:

"Bilateral Hydrosalpinx
More on RI>Lt
Options: A) OHIP IVF; B)Corrective surgery (may loose coverage if opened but not pregnant)
Hysteroscopy done
Small septum divided"
with his email at the bottom.

D, of course didn't recognize the diagnosis, and the nurse either didn't know either or pretended not to know, but I knew what it meant right away.

Both of my tubes are blocked.

I have no chance of ever conceiving a child without IVF.

We had the nurses call for Dr. M twice while I was still recovering enough to go home, but he was in surgery and I never got to see him.  Today I sent him an email, but he has not responded yet.  I also called his clinic to book a follow up appointment that he wanted in 4 weeks, but the earliest appointment I could get is not until February 18th.  I don't even know what time it is booked for, I was so upset, I just hung up.  The longer this is left with no response from him the angrier I will be.  I was very happy with my treatment so far with him until now.  But leaving that kind of information in a note???  In my opinion, it was very unprofessional.

We left the hospital and my parents came back to our house for dinner and to stay with me while D went to the pharmacy to pick up my drugs.  My dad came up and said my mom was outside dealing with a call from work.  It wasn't until later that night that they told me the call was not work, but in fact was my aunt telling her that my grandmother had passed away.

They figured that they wouldn't burden me with that info after they day I'd already had, but then my cousin posted something on Facebook and they decided to tell me so that I wouldn't learn about it by reading it on Facebook.  I'm glad they finally told me, I think I would have been more upset if they'd successfully kept it from me for another day or two.

Physically I'm doing ok today.  The shoulder pain that was bad last night is better today and I can sit up for more than 20 min.  I still can't really use my stomach muscles to sit up on my own or get out of bed on my own, but I haven't had to take any T3's since first thing this morning.

I'm off to bed now, maybe tomorrow I can do more research on my new diagnosis, but for now i'm still trying to wrap my head around it.

Wednesday, November 30, 2011

One more sleep

In a little more than 12 hours I will be at the hospital getting ready for surgery.  I'm really trying not to think about the details, so I'm managing to stay pretty calm.  I have my ipod ready with a relaxation track to help me sleep if I need it.  I will post tomorrow (or maybe not till Friday if I'm too drugged when I get home) with a play-by-play of what happens when I get there.

Monday, November 21, 2011

Q & A

1. How big is my septum? 
    7mm.  Dr. M assures me this is actually quite shallow as septums are concerned.

2. Will you be able to remove it all with one surgery? 
    Absolutely

3. What is the difference between a septum and a bicornuate uterus? 
    The outside of the uterus is dipped along with the uterus in a bicornuate uterus.  

4. Is there a difference in treatment?  
    Surgery is not performed on a bicornuate uterus.

5. How do you know it's a septum and not bicornuate?  
    According to the 3D ultrasound done during the hysterosalpingram, my uterus appears normal from the outside.

6. Will you do an HSG at the same time? 
    No need, we will be doing a LAP

7. Will I see you before/after the surgery? 
    Yes, but I likely won't remember seeing him after due to the drugs.  He will bring D in and tell him everything.  Hopefully my mom too because she will be more likely to remember what he says. 

8. How long can D stay with me before the surgery? 
    This question didn't really get answered.

9. Does it matter when in my cycle the surgery is done?  
    No

10. Is there any potential that I will lose a tube or that the tubes become blocked because of the surgery?
     Definitely not!

11. What can I expect in terms of recovery? 
     I will be very groggy from the anesthesia, and maybe nauseous as well.  The nurses in recovery will give me something for the nausea. After that  I may have some abdominal tenderness "like a bruise" at the incision sites.  The incisions will be so small that they don't even require a stitch, only 5mm. I may experience some pain from the gas the insert into my abdomen to expand it so he can see.  They will try to remove as much as possible, but the gas can travel up to my shoulders and cause pain.

12. What pain killers will I be given?  
     Naproxen and Tylenol 3

13. How long will I be off work? 
     Friday.  He thinks I should be better after 1 or 2 days... I'm not so sure.

14. Will I have a balloon inserted? How long will it be there?  
     No, not for a septum as shallow as mine.

15.  Will I need to be on estrogen or progesterone after?  
     No, not for a septum as shallow as mine.

16. When will we be able to start to TTC?  
     After one complete cycle. I will likely have a period within 10 days of the surgery, and because it's so soon, he wants us to wait one full cycle after that. So, January.

17. Will any pregnancy I have after this be automatically considered high risk?  
     I didn't ask this question... I was nervous and skimming down this list.

18. What are the risks during pregnancy as a result of the surgery?  
     Same as the last question.

19. What will my first cycle after surgery be like?  
     Very heavy.  I usually have a few days of spotting before AF arrives, but he said it will likely begin suddenly and very heavy, with no warning spotting.

20. Will we do any drug treatments right away?  
     Yes, we will continue with the Femara.

21. How any timed cycles will we do before moving to IUI?  
     I didn't ask, I'm still holding out hope that I won't have to.

22. Is it possible to build up a resistance to Femara? It worked great in cycle 1, then cycle 2 was long and no ovidrel, cycle 3 was upped to 5mg and was short, cycle 4 is also at 5mg and was long. 
     I didn't ask, I chickened out.

23. From the research I've done, septum's are often associated with recurrent losses, since I have never had a pregnancy or a loss, what are my chances that this will solve my problem and actually get me pregnant?  
     I didn't ask, I chickened out.

24. In each of the 3 cycles that I did a trigger shot my period came exactly 11 days after the injection leaving me with an LP of 10 days max.  Is that long enough?  
     No it's not long enough, that's called a Luteal Phase defect.  The corpus luteum that is left behind after the egg is released from the follicle is not producing enough progesterone to prevent the lining of the uterus from shedding.

25. Should I be on a progesterone supplement after the surgery?  
     Yes, we will add that into my cycle in January.